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World FND Awareness Month
This April Join Us to Spread FND Awareness Across the Globe
April 2022
RAISING FUNDS FOR HOPE
Make A Donation
Donat to FND Hope | FND Hope UK | FND Hope Canada
Visit our website to see the convenient ways to donate by check or credit/bank card via Facebook or Pay Pal. (You do not need a Pay Pall account)
FND Hope Merchandise
Spread Awareness
Here are 5 ways you can show your support this April to help others become #FNDaware!
Don’t forget to share your experience on social media using #FNDaware | #FND2023 | #LetsTalkFND
Light the World for FND
GO BLUE AND ORANGE FOR FND AWARENESS MONTH
Here are a few ways you can support FND Awareness Month:
- Request to have your local monument, building, or street art to be light up Orange and/or blue
- Google the property you wish to ask Light Up.
- Many places will have an online Lighting Request Form for you to complete. Refer to the Light Up Request Letter for details
- When an online Lighting Request Form is not available, feel free to DOWNLOAD the Light Up Request Letter to send to the appropriate authorities along with the FND Hope letter of support.
- Keep us informed of the places you have sent a request. Send the details including the contact name and their email address to events@fndhope.org to ensure FND Hope can follow up on your behalf.
- Take a picture wearing blue/orange, standing in front of a blue/orange wall, or with your face painted blue/orange. Then, tag FND Hope on social media!
- Purchase FND Hope official merchandise and share a picture of you sporting your new swag!
- Wear blue and orange while participating in a 5K, Move-A-Thon, or other FND Hope fundraiser. Fill out a fundraising event form or in the UK an Enthuse Event and we can get you set up with resources and information.
#FNDAWARE SOCIAL MEDIA CHALLENGE
Be #FNDaware
An easy way to get involved in World FND Month is by participating in the #FNDaware social media challenge. Just follow the 4 steps below;
- DOWNLOAD the ‘I Am #FNDaware’ Sign Standard DOWNLOAD A4 DOWNLOAD
Print or display on a laptop, Ipad, Notepad, etc, making the sign fit fullscreen
- Take a photo of yourself holding the ‘I am ‘#FNDaware’ sign
- Post the photo to all your social media platforms
- Copy and Paste the following to write on your post;
I Am #FNDaware. Are you?
Please support World FND Month, April 2022 by sharing my post on your social media, then, go to fndhope.org and ‘Be Part of the Global FND Movement!’
Awareness Flyers
Help others become #FNDaware by printing or emailing the World FND Month awareness flyer and sharing it with healthcare professionals and /or the public. Then, don’t forget to share your experience on social media using hashtags.
Hang a World FND Month poster in your office, school, or local community space. Share videos, infographics, fact sheets, or other resources with your community!
Join us!
Hold your own event
- Decide what type of event you want to do (Need some ideas?)
- Fill out the event form
- Share your event on social media using #FNDaware | FND2023 | #LetsTalkFND
Share your story
Contact the Media
CONTACT YOUR LOCAL PAPER OR PUBLISH AT THE MIGHTY
Tips on getting your story published:
- Decide which section of the newspaper would be most interested in your story. Most media forms have a health section or think how your story relates to other sections.
- Become familiar with the type of stories the news source typically reports on. Are you a good fit for their agenda?
- Be factual. If you are not sure your information is accurate or if it is an opinion, then, present it as such.
- Be prepared with your info and any info you want to provide (FND Hope Media Kit, Press Release).
- Brevity is key. Short compelling stories gain the most attraction. Don’t get caught up in the details.
- Provide a photo or prepare to be photographed.
Your information:
Your Name: Address: Contact details: Answer the following questions:
• What were you and your life like before developing FND symptoms? (30 words or less)
• When did your functional symptoms start? (20 words or less) How long did it take to be diagnosed? (25 words or less)
• What are your symptoms? (You can group symptoms together i.e. involuntary movements, cognitive impairment, mobility)
• How has FND impacted your life and those around you? (50 words or less)
• What do you want others to know or understand about FND? (50 words or less)