FND Hope UK

FND Hope UK is part of the first and only global patient-led charity for people with Functional Neurological Disorder. Originating as a grassroots campaign, it uncovers the hidden world of FND and empowers those affected to live their best possible life.

The hard work and dedication by a few UK advocates, patients and medical professionals working together has become fruitful and FND Hope UK started supporting our UK FND community in 2015 and later became a registered CIO in England and Wales 28th June 2017 #1173607 and the first charity to be registered in Scotland 28th April 2018 #SC048333.

OUR MISSION

Our mission is to promote awareness, support affected individuals, and advance research for the prevention , treatment and recovery of FND.

OUR VISION

A world where FND patients can expect to be treated with dignity, care and respect, regardless of the cause of their symptoms.

OUR VALUES

We are a force for change, uniting the FND community in the pursuit of empowering and improving the health and of those diagnosed with FND or battling medical uncertainty:

    • Empowering individuals to advocate for themselves
    • Growing a supportive patient network
    • Improve understanding through education
    • Cultivating and pioneering best practices for ethical patient-centred care
    • Build an environment of collaboration and communication
    • Accelerating and support science based research
    • Fostering receptively to new discoveries
    • Operate with integrity and transparency

Charity Returns and Official Documentation

[image_frame url=”14938″ action=”open-url” link=”http://apps.charitycommission.gov.uk/Showcharity/RegisterOfCharities/CharityWithoutPartB.aspx?RegisteredCharityNumber=1173607&SubsidiaryNumber=0″ image_caption=”UK Charity Commission”]

[modal_window show_on_load=”no” title=”REGISTERED CHARITY ENGLAND & WALES 1173607″ invoke_title=”England & Wales Charity Information”]

REGISTERED CHARITY ENGLAND & WALES

Charity no.: 1173607

Charity Address: 21 Chetwode, Banbury, Oxfordshire, OX16 1QN

OBJECTIVES

The relief of sickness and preservation of health of those affected by Functional Neurological Disorder (FND) and their families, carers and communities.  In particular, but not exclusively by:

  • Raising awareness and understanding of the general public into the nature, causes, diagnosis, prevent, treatment and recovery of FND through social media, charitable events, medical conference and any other educational means such as leaflets and booklets.
  • Coordinating a voluntary FND patients register to assist doctors in the advancement of new and ongoing research, prevent, treatment and recovery of FND in partnership with the Genetic Alliance.
  • Working with Medical and Allied Health Professionals to provide a better understanding of FND, improve medical protocols, and promote ethical standards for FND through personal contact, advocacy and training.

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IMPACT REPORTS

FND Hope UK Impact Report for 2021

[image_frame url=”14944″ action=”open-url” link=”https://www.oscr.org.uk/about-charities/search-the-register/charity-details?number=48333″ image_caption=”Scotland Charity Regulator”]

[modal_window show_on_load=”no” title=”Scotland Charity Information” invoke_title=”Scotland Charity Information”]

REGISTERED CHARITY SCOTLAND

Charity no. SC048333 

 

Charity Purpose

B – the advancement of education
D – the advancement of health
N – the relief of those in need by reason of age, ill-health, disability, financial hardship or other disadvantage

Charity Objectives

The relief of sickness and preservation of health of those affected by Functional Neurological Disorder (FND) and their families, carers and communities. In particular, but not exclusively by:

  • Raising awareness and understanding of the general public into the nature, causes, diagnosis, prevention, treatment and recovery of FND through social media, charitable events, medical conferences and any other educational means such as Leaflets and Booklets.
  • Coordinating a voluntary FND parents register to assist doctors in the advancement of new and ongoing research, prevention, treatment and recovery of FND in partnership with the Genetic Alliance
  • Working with Medical and Allied Health professionals to provide a better understanding of FND, improve medical protocols, and promote ethical standards for Functional Neurological Disorder through personal contact, advocacy and training.

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We are members of…

[image_frame url=”14942″ action=”open-url” link=”https://www.neural.org.uk/” image_caption=”Neurological Alliance”]

[image_frame url=”14941″ action=”open-url” link=”https://www.ncvo.org.uk/” image_caption=”NCVO”]

[image_frame url=”15980″ action=”open-url” link=”https://ocva.org.uk/” image_caption=”OCVA”]

[image_frame url=”16122″ action=”open-url” link=”http://www.smallcharities.org.uk/” image_caption=”Small Charities Coallition”]

[image_frame url=”14905″ action=”open-url” link=”https://www.fundraisingregulator.org.uk/” image_caption=”Fundraising Regulator”]

[image_frame url=”14940″ action=”open-url” link=”https://ico.org.uk/” image_caption=”Information Commissioner’s Office”]

[image_frame url=”14937″ action=”open-url” link=”https://www.alliance-scotland.org.uk/about-the-alliance/” image_caption=”Alliance”]

[image_frame url=”14939″ action=”open-url” image_caption=”Genetic Alliance”]

[image_frame url=”16401″ action=”open-url” link=”https://www.walesneurologicalalliance.org.uk/” image_caption=”Fundraising Regulator”]

[image_frame url=”16402″ action=”open-url” link=”https://www.scottishneurological.org.uk/” image_caption=”Information Commissioner’s Office”]

[image_frame url=”16957″ action=”open-url” link=”https://www.nationalvoices.org.uk/” image_caption=”Member of National Voices”]