WHAT WE DO

We aspire to drive high-quality standards for FND care across the globe.

IN-PERSON PEER SUPPORT GROUPS

UK Support Groups

US Support Groups

CA Support Groups

We are working with volunteers and health professionals to create more In-Person Peer Support Groups.

PEER TO PEER SUPPORT

Navigating the world of FND can be frustrating, confusing, and isolating. FND Hope has teamed up with local FND healthcare providers to establish in-person support groups in some areas. We also have the largest online FND peer support community.

HealthUnlocked and Facebook chat groups are a great way to meet others and discuss FND.  Some groups are ‘open,’ meaning posts will show up on your wall for everyone to see.  Other groups are ‘closed,’ meaning nothing will post to your wall, although the group name may appear on your Facebook profile.

We encourage you to see if in-person or online support is right for you!

At FND Hope we give our members a voice. We lend them our ear. We give everyone a place to call their own and a place to feel secure. We give people the courage to keep going and the strength to endure each day.

Most of all, though…

We give people hope!

FBlogo

Facebook

Facebook – FND Hope Sponsored Pages

Open Facebook Pages

Like our page! Stay up to date with research, advocacy, awareness and more. You can also share information about FND with your Facebook friends.

Closed Facebook Groups

The following are closed (private) groups, so only members will see your posts. You will be asked three questions to verify that the group is appropriate for you. You must answer these questions to be accepted into the closed group.  

International
Closed Group

UK
Closed Group

US/CA
Closed Group

AU/NZ
Closed Group

Netherlands
Closed Group

Carers/Care-Partners
Closed Group

Mens
Closed Group

Netherlands
Closed Group

Support can mean many different things to many different people. The support you need as you struggle to regain your health is likely different from the support you need to maintain and balance your health. Talking with others is often a very healing type of support. This can come in the form of a friend (in-person and online), family member, or mental health professional.

HealthUnlocked

For those who don’t have Facebook, try our HealthUnlocked forum.

HealthUnlocked is a place where people can ask and answer questions based on experience.

*Online Facebook and HealthUnlocked chat groups are a great way to meet others with FND. There are no medical professionals on these pages and is strictly peer to peer support. Any advice or recommendations are not meant to replace the advice of your physician and not to be used as medical advice.

PLEASE DISCUSS ALL MEDICATION AND SYMPTOM CHANGES WITH YOUR HEALTHCARE PROVIDER.

V/Blog

We want to give a shout out to all the bloggers who share their experience of living with FND. V/Bloggers are an important part of FND advocacy and we encourage others to take the time to check out these v/blogs.

Please Note: FND Hope does not monitor these blogs and is not responsible for its content or information provided. We urge all patients to seek the advice of their healthcare provider before trying any new “FND Tips” or changes suggested in the blogs listed below.

Want to be added to our blog list?

Email to office@fndhope.org the following and we will consider adding your blog to our list.

  • Your name
  • Country
  • Name of your blog/vlog and the following links on your blog:
    • Link to Home page
    • Link to page highlighting April World FND Month
    • Link to page listng FNDHOPE.ORG webpage as a resource

 

You may also want to add links to your social media profiles (Please make sure you have like, followed, friended us!)

Please make sure you are using our 3 FND awareness hashtags #FNDaware #FND2020 #LetsTalkFND

Visit FNDHope.org by hope869

Social Media

Let’s be social!